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WHAT PATIENTS ARE SAYING

The retreat had a big impact.. it was kind of magical. I mean we really bonded and connected. I really fell in love with the people that I was with.

People like me will go through this and you can see my story on a segment like this and know that you’re not alone.

We were able to talk to each other without any filter or being worried about how somebody else would be impacted by what our stage iv cancer means to us.

Photo: Rachel B., Jenny S., & Oauja W. (d. 4.30.22) Background Photo: Patients During 2023 Legacy Retreat

OUR LATEST VIDEO PROJECTS

Milan Fashion week 2023.

Living My Breast Life Concert Series

Beth Fairchild and Dana Donofree onstage at NYFW

OUT NOW ON

YouTube

NYFW 2023

Metastatic Breast Cancer Patients at Retreat

Legacy Retreat 2023

In memory of Champagne Joy

@lyrehclaw and @wren_morr taking a moment out of the busy #SABCS24 to celebrate 5 years of #metastatic #TNBC sur-thrivorship. You go GIRLS!! #cancerculture #cancerland #advocates

Sometimes living with a #breastcancer diagnosis can feel a bit like being underwater. We are here to help. @wearecancerculture wants you to know you’re welcome here in our community and we’ve created a safe space for everyone to share their story. #cancerculture #storytelling #truthteller #changemakers #breakthestausquo

“The darkest knights brings the brightest stars.” 🌟

See what I did there?? Ms. Niya KNIGHT on the #MilanFashionWeek runway, closing the show in this stunning in star-studded gown and head piece.

#breastcancer #advocate #fashion #art #representation #breastcancer #mastectomy #flatclosure #cancerculture
🎥 by @artandvibes
📷 by @kkphotoimages

Cancer Culture is a continuation of the work #ChampagneJoy started, but the organization itself is a byproduct of Rachel @wonder_woman_lives and Beth @bethloveeeee enduring #friendshio

Beth and Rachel met in 2014 via a YSC online forum, they have been working, advocating, and building community ever since.

We know how important #breastfriends can be. Tag your BREAST FRIEND below and let them know how grateful you are to have their support.

#grateful #gatitude #breastcancer #mbc #community #support #canerculture

No matter whether you #VOTE 🫏 or 🐘, I think we can all agree on the importance of showing up to the polling place today! 🇺🇸 🗳️ ✔️
#breastcancer #metastaticbreastcancer #support #vulnerability #sharing #community #fuckcancer #advocate #election #democracy

@wmlivingston joined Cancer Culture in 2021 as our resident creative. He was deeply impacted by working with the patient community and is passionate about helping tell their stories through photography.

#breastcancer #metastaticbreastcancer #support #vulnerability #sharing #community #fuckcancer #storytelling #art #photography

We believe everyone should have access to care regardless of your economic situation. Drop a 🙋🏻‍♀️🙋🏼‍♀️🙋🏽‍♀️🙋🏾‍♀️🙋🏿‍♀️ if you agree!
#breastcancer #metastaticbreastcancer #support #vulnerability #sharing #community #fuckcancer #healthcare #insurance #accesstocare #healthcaredisparities

Cancer Culture strives to create a space where patients can feel comfortable in their vulnerability. Where do you look for support? #breastcancer #metastaticbreastcancer #support #vulnerability #sharing #community #fuckcancer
📷: @janettephoto

Breast cancer is certainly misunderstood by the general public. What do you wish more people knew about living with a breast cancer diagnosis?

#advocacy #action #breastcancer #metastaticbreastcancer #support #community #quote

BCAwarnessM is winding down and the Holidays are coming quick, but we know that means nothing when it comes to #cancer

So, what’s happening in #Cancerland this week??

#breastcancer #mbc #mastectomy #treatment #chemo #support #community

People seem to think #cancer is cancer, as in the physical, and that once you’ve survived, it you should just be grateful to be alive…

Well let us tell you, cancer is NOT just CANCER, it’s fear, it’s grief, it’s an #emotionalupheaval 🫥 Cancer is pain, and nausea, and #exhaustion, it’s #sexless marriages and relationships, it’s #guilt, it’s #financiallytoxic … It’s chronic #stress 🤬

AND, just because someone is on the other side of treatment, it doesn’t mean these collateral symptoms just go away, OOOOH NOOOOO… Cancer is the gift that keeps on giving for the REST. OF. YOUR. LIFE. 👏🏼

Let’s speak the truth about cancer. Let’s normalize #cancernormals ✊🏼✊🏽✊🏾Let’s #STOP “sugar coating” cancer so that other people feel better about OUR diagnosis!!

Tell us what cancer is/has been to you, real and raw.

#breastcancer #mbc #metastatic #stagivneedsmore #treatment #sideeffects #fuckcancer #cancerculture

Champagne Joy was force in this world. She’s the reason why we’re here, why @wearecancerculture exists.

It dawned on me over the last few months that there have been a LOT of newcomers to the #breastcancerclub (851 a day to be exact), and there are so many women & men who took up the cause and blazed a trail in BC advocating that has landed where we are today that you new folks no NOTHING about.

It makes me sad because these friends were fierce and passionate about their work and they fought for change up until their last breath. As #advocates their work really did change the landscape of #breastcancer

sooooooo…

@wearecancerculture is starting a series called “They Lived” where we’ll reintroduce these incredible stories and faces to a community who is still standing on the labors of their work.
#mBC #BC #fuckcancer #theylived #storytelling #letmereintroducemyself #lostfriends #breastcanverkills #stageivneedsmore

Although it’s the last day of #hispanicheritagemonth for Hispanic women the realities and risks of BC continues all year long. People can’t know what they don’t know, so let’s GET LOUD about these breast cancer statistics in the Hispanic community!!!

“Breast cancer is the most common cancer in Hispanic women in the United States, excluding skin cancer.

Hispanic women in the United States have a lower incidence of breast cancer than the general population, with a lifetime risk of about 9.8%. This is about 30% less likely than non-Hispanic white women. However, Hispanic women are diagnosed at a younger age than white women.

Despite the lower incidence, Hispanic women have a higher mortality rate from breast cancer than non-Hispanic white women. Between 1990 and 2016, the breast cancer mortality rate for Hispanic women decreased by 29%, compared to 39% for white women.

Screening 🩻
Hispanic women are less likely to have a recent breast cancer screening than white women. Foreign-born Hispanic women are more likely to never have been screened, and US-born Hispanic women are more likely to have an outdated screening.

Treatment 💊
Hispanic women are less likely to receive recommended treatment regimens. They are also more likely to receive inappropriate primary surgical and radiation treatment.

Genetic testing 🧬
Hispanic women are less likely to be aware of genetic cancer risk assessments and to be tested.”
*Above text from NCBI

@wearecancerculture is committed to shining a light on the racial disparities in health care and telling relatable patient stories. No one should feel unseen or unheard.

#advocate #advocacy #healthdisparities #storytelling #racialdisparities #breastcancer #metastaticbreastcancer #cancerculture

Do you plan to attend #SABCS this year…

Come stay with @wearecancerculture We’ve rented a large space and we’re hosting breast cancer patients ONLY who are attending the meeting. This communal housing situation offers community building and place to rest and restore after a long day at the conference.

Lodging can be costly around symposium, but we’re offing this shared space for just $100 a night. Lots of amenities. DM US HERE FOR MORE INFO!

“SABCS® keeps patient experience at the forefront with extensive advocate involvement.

Advocates attend the SABCS® each year to learn about the latest developments in breast cancer research and care, but they are also active participants, sharing critical lessons from the patient community as part of the scientific dialogue.”

#breastcancer #sanantonio #advocates #advocacy #retreat #community #patients #cancerculture

My cancer diagnosis was the permission slip I never needed to start being more intentional with my life and time, and what better way to spend the day than with other like-minded friends and patients who are as passionate about making a difference as I am. Looking for ways to get involved?? Visit cancer culture.org and send us a note. #mbc #metastaticbreastcancer #breastcancer #cancerculture #advocates #allies #fearlessfriends

@wearecancerculture spent Metastatic Breast Cancer Day 10-13-24 doing what patients value the most, raising $$ for mBC research. The First Annual Breast Fest Golf Outing raised $30K!! We are so proud of @miss_lane89 for taking the reins and producing such a wonderful event. #mbc #metastaticbreastcancer #metastaticaf #cancerculture #fundraiser #research

This weekend was so amazing. I’m not sure any of us have quite the words just yet… Just know people see us and are moved by our stories. Pictured @rachelburnsmusic @bethfairchild and @paddlediva #breastcancer #hamptons #fundraiser #art #hamptonsbreastfest

@theshando passed from #metastaticbreastcancer Cancer today. Just another reminder of #WHY we do what we do. Shannen was one of the few celebrities being transparent about this disease and the need for more #research… and now she is gone. We need more voices. We need #MORE

This weekend was #hardwork @wearecancerculture and now we’re all going our separate ways again, headed home and back to our routines. I #HOPE everyone was able to take something positive from from this I hope everyone who joined as our guest will share what they saw, felt, learned, experienced.

People DO die from #METASTATIC breast cancer, and they #DIE from a #LACK of treatments and the underfunding of life saving research. They DIE because honestly NOT enough people give a #SHIT enough to actually make a difference.

#WE deserve to live. We deserve more treatment options. We deserve more time. #TIME We deserve more.

mBC patient and doctor, Cheryl Law @lyrehclaw was with @wearecancerculture at @thepurist Health Fair today showing attendees how to preform #breast #self-exams. We loved seeing so many familiar faces there and making new connections. #breastcancer #mbc #CancerCulture #breastfest @custom_caps_gr

Our Saturday gallery showing features LIFE-SIZE portrait photography by the one and only @janettephoto who captured images of all our patient models during the 2019 @anaonointimates X @wearecancerculture #NYFW event #fearLESS

That year, all the models on the runway were #metastatic and to date, 14 of the 24 models have died from #metastaticbreastcancer Several of the models will be in attendance along side their photo as part of a living art installation.

Please join us Saturday evening at @abnygallery from 6-8PM. More info at CancerCulture.org

About @janettephoto …

British-born photographer Janette Beckman began her career in the punk rock era working for music magazines The Face and Melody Maker. She shot bands from The Clash to Boy George as well as three Police album covers.
In 1983 she moved to New York to document the underground hip-hop scene photographing pioneers Run DMC, Salt-N-Pepa, LL Cool J, Slick Rick and many more.
Her work has been shown in galleries worldwide and is in the permanent collections of the Smithsonian National Museum of African American History and Culture, the Museum of the City of New York and the British National Portrait Gallery.
She has published five books, including ‘Rap Portraits & Lyrics of a Generation of Black Rockers’(1991). “Made in the UK’ (2005), ‘The Breaks Stylin’ & Profilin” (2008) and ‘The MashUp’ (2018) a collaboration with
iconic New York graffiti artists reinterpreting her hip hop images.

Her monograph covering 40 years of photography “Rebels From Punk To
Dior’ was recently published by Drago leading to the current ‘Rebels’ exhibition at the Foam Museum in Amsterdam. Janette believed it was important to collaborate with CancerCulture in 2019, her mother and many friends have had breast cancer.

Janette continues to chronicle sub-cultures as well as photographing campaigns for brands like Dior and Levis .
She is represented by the Fahey Klein Gallery.
Instagram : @janettephoto
Website : www.janettebeckman.com

Don't miss summer sounds by Trish Mann aka @djmisbehaviour pool side Friday night at @thembh 6 - 8 PM and again Saturday evening at @abnygallery Gallery during our live charity art auction.

Please RSVP at CancerCulture.org

Hope to see you there!

Today, Former U.S. Representative Jackie Speier announced on Facebook that she has breast cancer, joining the 300,000 women diagnosed with the disease each year. Cancer may not discriminate against gender, age, ethnicity or socioeconomical status but it seems affordable, quality healthcare does.

Over the years we have connected with so many people from around the world, and it’s been made apparent that the same opportunities for preventative health care, and cancer treatments are not the same for every individual. This is a huge injustice, and one that is often overlooked.

We realize and celebrate that we have a free country and society that our forefathers secured for us, but we also acknowledge that this may only reache certain perimeters. Our focus must now be that equality runs freely, allowing everyone to benefit from it, within whatever arena; including the healthcare system.

Who’s coming!?!

Join us for Hamptons Breast Fest July 12 & 13, 2024

We’re kicking things off with a booth at the Purist Health Fair (25 Jobs Lane, Southampton) 11AM - 2PM,
followed by a private viewing of Legacy Portraits by Bill Livingston and a meet a greet party by the pool at The Montauk Beach House (55 S Elmwood Ave, Montauk), 6PM - 8PM.

Saturday features our main event at ABNY Gallery (62 Newtown Lane, East Hampton) 6PM - 8PM. There, we present a gallery showing of photography by the one and only Janette Beckman, as well as unique custom works by celebrated artists created over portraits by Bill Livingston. Custom art will be sold as part of Cancer Culture’s fundraising efforts. Private Party to follow.

All portraits feature patients living with breast cancer.

For more info visit cancerculture.org or email info@cancerculture.org for questions.

*TICKETS ARE FREE, but we DO ask that you RSVP through the GET TICKETS link provided.

SAVE THE DATE! More to come. #cancerculture #fundraiser #patientexperience #art #breastcancer #cancerland

Want to know what it is to “Experience the Culture”? Join us this Monday during the Pilot Episode of the Cancer Culture podcast.

This episode is full of laughter, tears, cancer stories and plenty of looks into Culture.

Join us on all audio platforms! 💚🩷💙

Individuals experiencing chronic pain may find themselves feeling depressed or anxious. Other common emotional responses to pain can include sadness, frustration, anger or feeling misunderstood. How has palliative care or pain management helped you? Share your stories of encouragement in the comments below⬇️⬇️⬇️

And it’s caused 99% of the deaths related to breast cancer. Sick of this shit!😡 #stageivneedsmore #NotOneMore #dyingforacure #notachronicillness

Happiest of Birthdays to this incredible human. @miss_lane89 is responsible for 99% of what you see on the CC social media and we are grateful for her dedication and friendship. Celebrating you today you bad ass bish!! #birthday #celebration #breastcancer #metastaticaf

In loving memory of Sheila Johnson—another cherished life taken by metastatic breast cancer. May her story and her words live on forever. #ThisIsMBC

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